Batten Disease Support and Research Organization (BDSRA)

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We seek to be an international support and research networking organization for families of children and young adults with an inherited neurological degenerative disease known as Batten disease.

Contact information:

Lisa A. Weston, MPA – Program Director
Toll-Free: (800) 448-4570, ext. 12; Direct: (614) 973-6012
Email: lisaweston@bdsra.org

Batten Disease Support and Research Association
1175 Dublin Road Columbus, OH 43215
Fax: Toll-Free (866) 648-8718

The fund is not a competitive fund
web site: http://www.bdsra.org/