National Marfan Foundation (NMF)

Funding Profiles

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The National Marfan Foundation (NMF) is the primary source of accurate and up-to-date information on Marfan syndrome and related disorders. It was founded in 1981 by a handful of individuals seeking help to understand the complex condition affecting themselves and their loved ones.

Contact information:

National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050

Toll Free: (800) 8-MARFAN
Telephone: (516) 883-8712
FAX: (516) 883-8040

The fund is not a competitive fund
web site: http://www.marfan.org/marfan/