Lowe Syndrome Association - LSA

פרופילי מימון

פתוח לחברי סגל הטכניון בלבד. אנא התחבר\י כדי לצפות בפרופילי המימון של הקרן (בפינה הימנית העליונה).

The LSA is an international, voluntary, non-profit organization made up of parents, friends, professionals, and others who are interested in Lowe syndrome (LS), a rare genetic condition that affects boys. We've been working since 1983 to develop a community of support and encouragement for families affected by LS.

Our work is guided by our purposes:

  • to foster communication among families
  • to promote a better understanding of the syndrome
  • to provide medical and educational information
  • to encourage and support research.

פרטי קשר:

PO Box 864346 
Plano, Texas 75086-4346

Phone: 972-733-1338

הקרן אינה קרן תחרותית.
אתר הבית: http://www.lowesyndrome.org/