XLP Research Trusts

פרופילי מימון

פתוח לחברי סגל הטכניון בלבד. אנא התחבר\י כדי לצפות בפרופילי המימון של הקרן (בפינה הימנית העליונה).

X-linked lymphoproliferative syndrome (XLP), which is also known as Duncan’s syndrome, is a rare always fatal disease that affects only boys. To date only about 100 families and 400+ boys have been diagnosed worldwide. It is likely, however, that there are many more cases where the correct diagnosis has not been made.

XLP can have many symptoms including: severe glandular fever, cancer of the blood (lymphoma) and inability to fight off infections and sometimes severe anaemia. 70% of individuals with XLP die by the age of 10 years without any treatment. The cause of the condition was only found in 1998 so there is still a lot to learn.

The best ‘prevention’ is regular top ups of anti-viral medicines, immunoglobulin therapy or steroids – but these are not a cure. Today the only possible cure is a bone marrow transplant – in effect replacing the faulty immune system.

However with advances in genetics a potential cure may now only be a few years away.

פרטי קשר:

The XLP Research Trust 
60 Winchester Road 
SO51 8JA 
United Kingdom

Tel: +44 (0)1794 521077

Registered Charity No: 1111075

Please note that the phone is only occasionally manned but does have a 24 hour messaging service.

הקרן אינה קרן תחרותית.
אתר הבית: http://www.xlpresearchtrust.org/default.asp