Children's Tumor Foundation

Funding Profiles

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The Children's Tumor Foundation is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF). The mission of The Children's Tumor Foundation is to: Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF"); Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information; Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and, Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.

Contact information:

Mailing Address
The Children's Tumor Foundation
95 Pine Street, 16th Floor
New York, N.Y. 10005

Telephone: (212) 344-6633 or Toll Free at 1-800-323-7938
Office hours are Mon. through Fri., 9 AM to 5 PM EST. Voice mail messages for The Children's Tumor Foundation may be left at either phone after hours.

Fax: (212) 747-0004
Faxes may be sent anytime, 24 hours a day, 7 days a week.

E-Mail: info@ctf.org This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Regional Offices

California Office:
8939 S. Sepulveda Blvd., Suite 516
Los Angeles, CA 90045-3616
Phone: 310-216-9570
Fax: 310-216-7789
Email: kmcgowan@ctf.org This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Kelly McGowan - Chapter and Affiliate Coordinator West Coast/Mnt Regions

New England Regional Office (MA, RI, NH, ME, VT, Northern CT):
268 Summer Street, LL
Boston, MA  02210
Phone: 617-456-4706
Fax: 617-292-0019
Email: jheropoulos@ctf.org This e-mail address is being protected from spambots. You need JavaScript enabled to view it , kberentsen@ctf.org This e-mail address is being protected from spambots. You need JavaScript enabled to view it

John Heropoulos , VP - New England Development
Kathleen Berentsen, MS, MPH, CGC, Clinical Program Coordinator

NF Endurance Team Office
--> 33 Highview Road - Building B, 2nd Floor
Sellersville, PA 18960 
Phone: 800.323.7938 x251
Fax: 866.288.1392

www.ctf.org/endurance
nfendurance@ctf.org This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Steve Kendra, Director

 

 

 

 

 

 

 

 

 

 

 

The fund is not a competitive fund
web site: http://www.ctf.org/