United Leukodystrophy Foundation

Funding Profiles

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The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies are a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted. The ULF is supported solely by donations.

Contact information:

United Leukodystrophy Foundation
224 North Second Street, Suite 2
DeKalb, IL 60115
Phone: (800) 728-5483 or
Direct: (815) 748-3211
FAX: (815) 748-0844
Email: office@ulf.org

The fund is not a competitive fund
web site: http://ulf.org/