NBIA Disorders Association

Funding Profiles

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The NBIA Disorders Association, formerly known as Hallervorden-Spatz Syndrome Association, (HSSA) was originally founded in 1996 by President, Patricia Wood. The goals of the association are to raise funds to support research pertinent to NBIA; to provide emotional support to those afflicted with NBIA and their families; and to raise public awareness of NBIA


Contact information:

pwood@NBIAdisorders.org 

telephone at (619) 588-2315


The fund is not a competitive fund
web site: http://www.nbiadisorders.org/