Cornelia de Lange Syndrome (CdLS) Foundation

Funding Profiles

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The CdLS Foundation is a national non-profit organization that has served people with CdLS and their families since 1981. The Foundation’s mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

The Foundation is the only organization dedicated to CdLS in the nation. It distributes a number of publications to families and professionals caring for children with CdLS, and hosts meetings and conferences where researchers and families can meet to exchange information. The Foundation also acts as a facilitator between families and professionals, utilizing a team of professionals who lend their expertise to those caring for a child with CdLS.

Contact information:

Phone
860-676-8166
860-676-8255

Fax
860-676-8337

Mailing Address
Cornelia de Lange Syndrome Foundation
302 West Main Street, #100
Avon, Connecticut 06001
USA

The fund is not a competitive fund
web site: http://www.cdlsusa.org/index.htm