Alport Syndrome Foundation

Funding Profiles

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The Alport Syndrome Foundation (ASF) is a volunteer-led organization formed in 2007 by families affected by this disease. We are a 501(c)(3) non-profit corporation, but are essentially a group of concerned families and friends that want to make a difference. The Alport Syndrome Foundation has been built on the past efforts of the late Dr. Curtis Atkin of the University of Utah and the Hereditary Nephritis Foundation (HNF). The Alport Syndrome Foundation is also registerd with Guidestar, an organization dedicated to providing information on non-profits.


Contact information:

Mailing Address:

Alport Syndrome Foundation
1608 E. Briarwood Terrace
Phoenix, AZ 85048-9414

Email: info@alportsyndrome.org
Phone: (480)-800-3510


The fund is not a competitive fund
web site: http://www.alportsyndrome.org/home/