Barth Syndrome Foundation, Inc. (BSF)

Funding Profiles

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We are the only world-wide volunteer organization dedicated to saving lives through education, advances in treatment and pursuit of a cure for Barth syndrome (BTHS). We started in 2000, after the first international conference held in Baltimore, MD (USA) where families from around the world met to discuss BTHS. As a result, we made a unanimous decision to work together to find a cure for this multi-system disorder. Our Foundation strives to accelerate progress through collaboration between families and scientists.

Contact information:

P.O. Box 618
Larchmont, New York 10538

Science & Research
Matthew J. Toth, PhD
Science Director
Telephone: 732-283-3417
Skype Name: matt_bsf
Facsimile: 518-213-4061

The fund is not a competitive fund
web site: http://www.barthsyndrome.org/english/view.asp?x=1